I'm home!

Lucas came home around 2 pm Tuesday afternoon. The day was a blur unpacking, feeding, organizing, feeding, etc. We are super excited to have him finally here!. He mostly sleeps through the night but, we still feed him every 3 hours. At night he is fed through the button mostly. He's had some trouble with refluxing during his feeds and they almost kept him another day because he lost weight two days in a row. We agreed to two home health visits a week for two Weeks and see the pediatrician on Friday to get him home. The doggies will love that!So far, I'm both tired and yet too excited to sleep. The latest concern besides his weight is related to the first bone study. He has another scheduled in June and an appointment with the geneticist in July. They're concerned he may have a mild form of dwarfism called *rhizomelia which results in the shortening of or lack of symmetry between the limbs. We will find out more with time this summer.