April fools and happy Easter

One thing you never quite get used to is the uncertainty. Lucas did not have surgery Tuesday and will not be having surgery this week most likely. He is being evaluated by the staff here. He had two big tests Monday and Tuesday to check that his stomach and parts are all where they should be and to see how he is eating. They confirmed what we suspected which is that he is aspirating his milk when he eats. Right now they have started putting rice cereal with his milk to thicken it to try to help him eat better. It seemed to help initially but now he's back to just taking a 10-20 ml by mouth. Because its Easter weekend, his surgery discussions will take place next week but we had our first consult with the surgical rep today and all agree that unless Lucas miraculously improves his eating over the next few days, he will still need the g button. Its very likely they'll also do the surgery to shrink the opening from the stomach to the esophagus to help reduce the likelihood of aspiration and spitting up. Its been an emotional and trying week, more than I expected. we are ready for our son to be home and continue to hope for the best. He did come off oxygen about an hour after he arrived at Childrens and has done very well off it. we will post more when we know more. Happy Easter from Lucas and family. Thanks Donna for the card!